Fibromyalgia and CFS/ME Awareness Day
Today is Fibromyalgia and CFS/ME Awareness Day. Many people around the globe are bringing attention to these illnesses this week. I have struggled with both for the past twenty-five years. It’s difficult living with a debilitating illness that is invisible.
People can have a different severity of symptoms which makes things even more confusing. Some people can be bedridden or housebound for years, such as the author of Unbroken and Seabiscuit Laura Hillenbrand. Others are able to work full time jobs, but crashing when they come home. I have been somewhere in between.
When I first got sick I had to spend a lot of time in bed. Today my most challenging symptom is extreme fatigue, but it is not every day. It’s enough that it greatly impacts my life though. I’m only able to work a few hours a week. Each day I have to evaluate what I’m able to do and often have to cancel plans.
I am grateful for many things though, such as being a mother, my family, my toy poodle, warm bed, etc. Each day I try to get out of bed with expectancy. I enjoy things such as crafting, bible journaling, reading and gardening. I am grateful that there is such a thing as
Fibromyalgia and CFS/ME Awareness Day . It gives people living with these challenging illnesses a voice.
Here are some resources for those of you not familiar with these illnesses or just wanting more information:
1.Unrest- A documentary on Netflix about a couple’s journey with CFS/
myalgic encephalomyelitis .
2.Learn about the symptoms of CFS/ME
3.Learn the difference between CFS/ME and fibromyalgia
4.Letters to friends about living with fibromyalgia
5. National Fibromyalgia Association
Here are some of my previous posts about living with chronic illness:
2.An interview I did with a fellow blogger who has fibromyalgia
Do you know anyone living with fibromyalgia or CFS/ME? Have you heard of
Fibromyalgia and CFS/ME Awareness Day?
Leave a Reply